Despicable Vulture Scumbags

My thoughts on a company that sells useless pseudoscientific hardware to an ALS victim.

Filed under Alternative Medicine, Consumer Ripoffs, Health, Logic & Persuasion

Skeptoid #89
February 26, 2008
Podcast transcript | Listen | Subscribe
 

Today I'm going to depart from the usual format and answer a single email that I received. You get a lot of email when you do a show like this — most of it praise or thanks for helping a friend; a bit of it negative, which is usually both obscene and anonymous; and once in a while something that really gets my attention. The following email was of this latter variety:

I am writing you because I am upset, confused and angry... very, very angry.

My good friend was just diagnosed with amyotrophic lateral sclerosis (ALS) and it is heartbreaking. He has three very young children. I had lunch with my friend today and listened to him tearfully speak of his fear for his wife and children's future, his rapidly deteriorating motor skills and the agony he will shortly endure. He is scared, as anybody would be.

His doctors say that there is little hope for him.

Unfortunately, he has been given the advice, perhaps by someone who wished him well, to undertake homeopathic therapies, specifically some warped device called the Baar Wet Cell Battery. To say that I am angered by this obvious attempt to cash in on my friend's fear and horrible condition is a monumental understatement. The device costs nearly $200 a month and doesn't even include instructions, which are an additional $15.

It's obvious that the $200 would be better spent on his family or even on research to discover a treatment or cure. This device is a crime against humanity, perhaps not physically, but philosophically. The people who perpetrate it should be incarcerated.

I have made the very difficult decision to not try to dissuade my friend from using this device as for now it is the only hope he is clinging to. Perhaps you have some advice you would be willing to give me and others in similar situations? Perhaps you can change my mind and suggest what to do...

Well listener, when I got your email, it really affected me. I could easily imagine myself in your friend's position, and in your position as well. Sadly your position is not unique. There are many such small personal tragedies around the world, and many people asking your same questions.

Amyotrophic lateral sclerosis, or ALS, is better known as Lou Gehrig's disease, and maybe best known these days as Stephen Hawking's disease. The sclerosis is a degenerative hardening of nerve cells in the brain and spinal column, resulting in painless weakness and atrophy of muscles, often leading to complete paralysis. Only one cause is known, a mutation responsible for only a few percent of cases. The average life expectancy is only two to five years after diagnosis, though five percent live 20 years. Stephen Hawking has survived 45 years so far. Over 5,000 people develop ALS in the United States each year, most of them white males over 40. In some cases, the progression stops, and a few cases have even reversed. ALS progresses differently in virtually every patient, and is thus exceedingly difficult to diagnose. There is only one approved treatment, the drug Rilutek, which has been shown to slow the progression of ALS in some cases and prolong life by a few months. No other treatments so far have been found to have any beneficial effect, though a number of clinical trials for other drugs are ongoing.

The use of a wet cell battery in New Age healing is the invention of Edgar Cayce, an early American celebrity psychic from the early 20th century. Cayce was best known for giving psychic readings on the sick, and developed a following of believers in psychic healing which still persists to this day. Virginia's Association for Research and Enlightenment, which claims tens of thousands of members, still promotes spiritual and psychic healing through methods developed by Cayce. One of these is the use of a wet cell battery. To use it, you mix chemicals in a bucket to create a weak battery. Next you mix the special "medicines", gold, silver, spirits, or iodine, in a secondary jar. A wire loops through these "medicines" and you apply the electrodes to your spine. You're supposed to do this for 30 minutes a day, and Cayce said months to years of daily application is required to get results. The claimed mechanism is "to introduce energy and medicinal vibrations directly into the body". There is no hypothesis behind the device suggesting how or why it might be useful.

The battery kit itself is $200 from this company Baar, but then there's a gigantic list of accessories and chemicals that you'll need a steady stream of, and these appear to account for the ongoing costs mentioned in the email.

The term "medicinal vibrations" is linguistic nonsense with no scientific or medical counterpart, so it was difficult to search for any research on this. I was not able to find any clinical trials or any research of any kind on a reputable source such as PubMed, into the efficacy of wet cell batteries for either wellness or treating disease. The Cayce web page for the battery makes no claims about its powers, although there is a long list of personal testimonials from customers of the Baar wet cell battery for all kinds of diverse conditions like fatigue, inner harmony, repolarization, and cold hands. Oddly, the authors of these testimonials managed to realize their positive results in far less than the "months to years" that Cayce said was required, often just days. Baar does point out that the device is not intended to diagnose, treat, cure or prevent any disease, and makes no claims about its usefulness. Apparently they leave that to people like whoever it was who recommended this product to your friend. Nevertheless, if Baar is knowingly selling this device to someone who believes it may treat ALS, they are indeed despicable vulture scumbags.

I'd like to read you the response of Dr. Stephen Barrett, who runs Quackwatch, to one of his frequently asked questions: "Isn't it better to at least try an unproven alternative therapy, than to simply give up, roll over and die?" Dr. Barrett says:

"I recommend taking whatever steps are needed to determine the accuracy of the 'terminally ill' prognosis. If it is correct, I would recommend spending the remaining time in the most productive way. In my own case, I would place my affairs in order, and continue to write about the topics I believe are most important. I would not waste 10 cents or 10 minutes looking for something that does not exist."

There's one thing that I would add to Dr. Barrett's suggestion, and it's a matter of personal choice. I'd probably participate in clinical trials, though I'd do it with the understanding that they are rarely successful, and with an awareness of potential side effects. Future ALS sufferers may benefit from my participation. Clinical trials are always free to the participants, and that's another important distinction between proper medical trials and quack treatments. The purveyors of quack nonsense like the wet cell battery always, always charge money. The ALS Association web site maintains a large list of clinical trials in which your friend might choose to participate. At best, he may find relief if one of these treatments pans out. At worst, his participation will further our knowledge of ALS and get us a step closer to the day when it's treatable.

$2/mo $5/mo $10/mo One time

ALS is no picnic, but it's also not the end of the world. Your friend has three small children who are always going to look up to him as their guiding light. He has their youth sports leagues to watch, their high school graduations, their first dates, their first broken hearts, their weddings. He has friends like you watching out for him, hanging out with him, taking him to the movies. How much of that will he be around to enjoy? Nobody knows. But then, you or I might get hit by a bus tomorrow. In that sense we all have the same concerns, and we can't all stop living our lives just because we don't know what tomorrow brings.

It is the nature of human beings to come and go. Passing on is neither unnatural nor unexpected. It's the way the world works. Death is not the culprit. The obscenity here is that someone is getting $200 a month richer off of your friend's tragedy. Someone who never went to medical school. Someone who probably couldn't tell you anything about the mechanisms of ALS. Someone who, I promise you, has never successfully treated ALS, and who has no plausible chance of ever doing so.

You've said you're reluctant to dash your friend's hopes. But hope does not come in the form of a worthless piece of pseudoscience. Hope comes from a realistic chance, no matter how small — get him into a clinical trial if he wants to work the problem. The demonstrably false hope sold by Baar and other Edgar Cayce followers is a ripoff and a lie. Your friend, and everyone like him who needs a chance and a break and some hope, deserves better.

You asked my advice, so I'll give it, controversial though it may be. Having ALS doesn't give your friend any special dispensation to cause additional grief to his family and friends. He still has obligations to them, he's not above being wrong, and he's not the only person affected by this. Tell him he's making a bad situation worse for those close to him. Make sure he has the tools to make an informed decision. Share your thoughts with his other family and friends. Be part of the solution and don't enable the problem.

Brian Dunning

© 2008 Skeptoid Media, Inc. Copyright information

References & Further Reading

ALS Association. "About ALS." ALS Association. ALS Association, 1 Sep. 2008. Web. 6 Dec. 2009. <http://www.alsa.org/>

Brown, R., Meininger, V., Swash, M. Amyotrophic Lateral Sclerosis. London: Martin Dunitz Ltd, 2000. 405-422.

David. "What's the scoop on Edgar Cayce, the "Sleeping Prophet"?" The Straight Dope. Sun-Times Media, LLC., 16 Jan. 2001. Web. 6 Oct. 2013. <http://www.straightdope.com/columns/read/1874/whats-the-scoop-on-edgar-cayce-the-sleeping-prophet>

Guion, Lee. Respiratory Management of ALS: Amyotrophic Lateral Sclerosis. Sudbury: Jones and Bartlett Publishers, 2010. 12-15.

Miller, Robert G., Gelinas, Deborah, O'Connor, Patricia. Amyotrophic Lateral Sclerosis. New York: Demos Medical Publishing, 2005.

Singh, S., Ernst, E. Trick or Treatment, The undeniable facts about alternative medicine. New York: Bantam Press, 2008.

Reference this article:
Dunning, B. "Despicable Vulture Scumbags." Skeptoid Podcast. Skeptoid Media, Inc., 26 Feb 2008. Web. 31 Jul 2014. <http://skeptoid.com/episodes/4089>

Discuss!

10 most recent comments | Show all 49 comments

you forgot to tell us about the price of your pamphlet Bob..

Mud, Sin City, NSW, Oz
March 23, 2012 8:03pm

I've found this one just by reading through the list of topics. The ALS in the descriptor attracted my attention immediately as well as Mr. Dunning's emotionalized manner.

My friend has recently been diagnosed with the same desease. And since then on I am telling him the same things as Mr. Dunning has in response to the reader's letter. This is a great support and I feel stronger in my attempts not to look like someone who is full of advises while a friend is dying. It's so sad I wish noone has the same experience.

Luckily my friend is under monthly supervision by the doctors in the central hospital. He is being injected some medicine once a week and recent analyses have shown that the desease is not progressing. So I am always there to support and spend some time together - as this is basically the only thing I can do for my friend.

Timur Ismailov, Russia, Gatchina
August 7, 2012 2:19am

Being there is the best you can do..

Mud, about to drive off in his etheric 1994 station wagon, NSW
August 7, 2012 8:52am

I couldn't agree more with your assessment of the situation Brian, and the way you wrote it was really moving.

I agree that I wouldn't let a friend of mine live in pure false hope for the sake of comfort, especially when there is something that offers realistic hope, however slim it may be.

On that note, as tragic as it sounds, I'd liketo point out to Kingsley that he likely did not experience 'false hope', unless the doctor communicated poorly. I doubt the toxicologist would've made the strong claims that the new age charlatans proffer. Rather I would imagine he offered a slim hope, which grieving people understandably cling to, which didn't end up working out.

Tragic, and perfectly understandable that anyone would try to focus on even a slim hope and be devastated when it didn't work out - but it's unfairly characterising the doctor and the behaviour of the medical community in general to call it a case of 'false hope'.

However, I wasn't there of course. If he did say 'this will fix it' or even 'there's a 75% chance this will work' and there was only a small chance, then that is false hope. However, making that kind of statement would usually get the doctor in trouble anyway, and from your own description of the situation it does sound like you were given an accurate estimation of the chances of it working.

Nicholas Fisher, Perth, Western Australia
October 26, 2012 12:30am

Nicholas, there are vultures who practice their woo for cash or credibility every where.

The bit I wrote after "are" covers all of them.

Magnnamous Dinoflagellate, sin city, Oz
May 19, 2013 6:39am

"The Cayce web page for the battery makes no claims about its powers, although there is a long list of personal testimonials from customers of the Baar wet cell battery for all kinds of diverse conditions like fatigue, inner harmony, repolarization, and cold hands."

I've heard of Edgar Cayce and that 'Association of Research and Enlightenment'. Personal tesimonials, yeah right.

What the heck is 'repolarization' supposed to be - or are they talking about old fashioned DC generators once used in cars, that had to be 'polarized' before installation........

Ron, Calgary Alberta Canada
October 31, 2013 4:21pm

No reason you have to denigrate vultures, and your metaphor is misplaced, anyway, since vultures are useful, even necessary in some places.

Stuart Frankel, New York
November 19, 2013 7:31pm

I believe "blood sucking parasites" would be a better descriptor for all of those things out there that feed freely on peoples' fears, whether we are talking about relligion, medicine, investments, vehicles, weight loss, or any other topic that exists to induce people to throw money at it in order to apply a quick fix for whatever is scaring them.

Swampwitch, Gainesville Fl
November 20, 2013 4:48am

I can agree with the Skeptoid to a point on the ripoff of such people that overcharge for their claims.
Electrotherapy is not new, been around for over 100 years, got banned by the FDA as the drug companies lobbied the gov't back about 60-70 years ago. Funny how it is coming back into focus again, soon drug companies will change or be like Kodak, digital technology cut their cash flow! Everyone knows the Human Body is an electrical device that sends and receives signals of electrons through it's whole system. The Barr battery is nothing complicated, any handy person can make one at about 1/4 of the cost. Shame on the Baar Battery for being greedy pigs!!!

Skyflyer, Calgary, AB
December 27, 2013 11:09am

Here, here. these people seem to do more Tomb Raiding than Lara Croft ever will.
If I had a month to live, I would do everything that I put off until later. These quacks stop that from happening, by telling them there IS definitely a later, when there isn't.

Bill, Canberra
March 19, 2014 3:45am

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